Wednesday, March 23, 2011

Big Sigh.....

Well, so much has happened, and yet, essentially nothing has changed. I had a bone marrow biopsy approximately 2 weeks following the chemo week. The results showed that nothing had changed. My stats are the same in regard to the % of leukemia cells in the marrow. (They are looking for less than 5% as a success toward remission, and I'm in the 40's- not even close). The following 2 weeks were recovery and transfusions when needed. Of course the decision of what to do next was discussed, and a clinical trial was mentioned. The clinical trial did look attractive, as it is done outpatient, and after a full month here, I am so sick of being away from my home. However, the goal of the trial was to determine a maximum amount a patient could take of a certain drug. Plus I couldn't get any info on the people who have gone before me, as to the success rate of going into remission. XX It just was too iffy, however it would still be available to me if this next treatment doesn't work either.
I am now doing a week of stronger chemo this week, and not so thrilled. Waiting for all those evil side effects to occur as well.... Still in the hospital- earliest date of release is now Apr 16th, which I doubt will actually happen. My brother was tested as a bone marrow donor, and there is a 25% chance of a sibling being a full match. Obviously now they are going for a transplant, so like I said, Apr 16th is probably a joke.
Yet still, they have to clear the bone marrow to get the transplant to work, so please think happy thoughts for me that this round of chemo will reduce that # immensely! Thanks =)

8 comments:

  1. This comment has been removed by the author.

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  2. I am trying sooo HARD not to scream at the _____ ::sighs in frustration:: Seven? Don't YOU think that another month *there* is- - -unhealthy?!! You're weak as a newborn baby, as it is, and the plan to BLAST you again...........

    You've got your 'warriors' already set up, on your back up- just waiting to get in there & finish the job, but in a HEALING way. Is this critical decision to re-nuke the 'planet' have to be your only course outside of some weird _ _ _ alternative?

    No!! You've done your homework. You KNOW cures that balance your pH and restore/replenish/reseed you. Oh, my Ursula, cutting in to you after a 2nd BLAST to your body is INSANITY!! ::sniff::

    If you're going to try to trust in this next batch of torture, then... ::draws sword:: I will (without question) stand true to that, but... as your friend, I had to give you my thoughts, so that you may have MORE than one or two against the council you've been given.

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  3. ((((hugs)))) I am sorry, Ursala. There are no words to express how I feel. It just stinks. But know that I am praying, bombarding Heaven, for you, that the Great Physician would heal and restore you. That He would be your Great Comforter, bringing peace and rest and ease, as He walks each step of the journey with you.

    You are an overcomer and you WILL overcome.

    Rhonda (aka SEANDA, aka lambofHisflock)

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  4. My prayers are with you...Ask any questions. I was oncology certified...Remember to fight with your mind...it makes all the difference...Start testing for the bone marrow transplant and get into the clinical trial....you are in my thoughts...always

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  5. *HUGS*

    I'm so sorry this is all happening. You're constantly in my thoughts & prayers.

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  6. Seven of Cupcakes,

    I just found this (I am a good writer but not good on the internet.....ha)

    You know I am shouting down Heavens gates..........and I know they hear me.

    Not a day goes by that I do not think about you.

    All my love,
    Nine of Pie

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  7. Thank you all again for your love, support, prayers, and opinions =)

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  8. http://www.youtube.com/watch?v=JGrPYjfe8rs

    Do you ever feel- like a plastic bag?
    Drifting through the wind~~~
    Wanting to start again?

    Do you ever feel- feel so paper thin?
    Like a house of cards- - -
    One blow, from cavin' in?!!

    Do you ever feel- already buried deep?!!
    Six feet under- "screams"
    And no one- seems to hear a thing?!!

    Do you know that- there's still a chance for you?!!
    Cuz' there's a *spark* in you?!!

    You just gotta' ignite___ the light___
    And let___ it shine___
    Just own___ the night___
    Like the- Fourth of July!!

    Cuz' BABY yer' a FIREWORK!!
    C'mon SHOW 'em what your *worth*
    Make 'em go "Oh, ah, uh!"
    As you SHOOT across the sky-y-y!!

    BABY yer' a FIREWORK!!
    C'mon let your colors *B*U*R*S*T*
    Make 'em go "Oh, ah, uh!"
    You're gonna' leave 'em fallin' down-ow-own!!

    You don't have to feel- like a waste of space-
    You're *original* can NOT be replaced!!
    If you only- knew what the future holds-
    After a hurricane- comes a *r*a*i*n*b*o*w*

    Maybe yer' reason why- all the doors are closed-
    So you can open *one* that leads you- to the- perfect road
    Like a LIGHTENING*BOLT- your heart will blow
    And when it's time you'll *K*N*O*W*

    You just gotta' ignite___ the light___
    And let___ it shine___
    Just own___ the night___
    Like the- Fourth of July!!

    Cuz' BABY yer' a FIREWORK!!
    C'mon SHOW 'em what your *worth*
    Make 'em go "Oh, ah, uh!"
    As you SHOOT across the sky-y-y!!

    BABY yer' a FIREWORK!!
    C'mon let your colors *B*U*R*S*T*
    Make 'em go "Oh, ah, uh!"
    You're gonna' leave 'em fallin' down-ow-own!!

    Boom! BOOM!! *B*O*O*M*
    Even *b*r*i*g*h*t*e*r* than the moon- moon- moon!!
    It's ALWAYS been inside of you- YOU! *Y*O*U*
    And now ***it's time*** to let it thro- oo- ough!!

    Cuz' BABY yer' a FIREWORK!!
    C'mon SHOW 'em what your *worth*
    Make 'em go "Oh, ah, uh!"
    As you SHOOT across the sky-y-y!!

    BABY yer' a FIREWORK!!
    C'mon let your colors *B*U*R*S*T*
    Make 'em go "Oh, ah, uh!"
    You're gonna' leave 'em goin' "Oh, ah, uh!"

    Boom! BOOM!! *B*O*O*M*
    Even *b*r*i*g*h*t*e*r* than the moon- moon- moon!!
    Boom! BOOM!! *B*O*O*M*
    Even *b*r*i*g*h*t*e*r* than the moon- moon- moon!!

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